A BLACK Country mum is staging a fun day and fundraiser at Stourton next month to help keep alive the memory of her daughter who died of a little known condition at just two weeks old.

Kate Dulson lost her longed-for little girl Phoebe as a result of a condition known as Congenital Diaphragmatic Hernia (CDH) which occurs when a baby’s diaphragm fails to develop properly - causing the stomach contents to herniate into the chest cavity.

The youngster was given a 50-50 likelihood of survival and after surgery her chances at first appeared promising but she suffered a bleed on the brain and died during a further surgical procedure - leaving parents Kate and Arran, from Halesowen, devastated.

Now nearly 18 months on - Kate is keen to give something back to the charity, CDH UK, that helped her through her darkest days.

She said: “ I want to raise awareness and funds for the charity so hopefully they can find out one day why this horrible condition occurs. It's as common as spina bifida but relatively unheard of."

Kate organised a fundraiser last year at Go Ape in the Wyre Forest which raised around £2,000. This time she's holding a family fun day at The Fox at Stourton on Saturday August 10."

Running from 1pm to 5pm, it will feature children’s activities, balloon modelling, stilt-walkers, a barbecue and bouncy castle.

Kate, aged 34, who has since given birth to Rosie, now aged five months, said: "I refer to her as my rainbow baby as they say a rainbow comes after a storm.

"Phoebe's always going to be my little girl though; it's the only way I can keep her memory alive by doing these fundraisers every year."

She said the first she and Arran, originally from Stourbridge, discovered there was potentially something wrong with Phoebe at the 20 week scan.

She said: "They said her heart was not in the right place but they wouldn't know any more until she was born."

"It took me three years to conceive Phoebe as I'd had an ectopic pregnancy before. When she came I was over the moon - which made it just more devastating really."

"It's such a heart-breaking condition. One of the biggest shocks for me was that I'd never heard of it and a lot of doctors weren't very aware of it either."

Kate, who also has a seven-year-old son Max, said the condition was highlighted on TV's One Born Every Minute in March - and she hopes to raise further awareness by speaking out and staging annual fundraisers for CDH UK.

Admission to the August 10 fun day is by donation at the door, with a small charge for some of the activities.

Any kind-hearted businesses or individuals wishing to donate raffle prizes for the event can email Kate at k_dulson@hotmail.com or to find out more about CDH visit website www.cdhuk.co.uk/